Wednesday, September 21, 2011

The Whole World

Honestly, there are some days when I feel like we are no longer in a pond, we aren't even in a large lake, but rather in a huge ocean - when the waves hit. But, the past few weeks it hasn't been OLA that has caused the largest waves that we are swimming against - it is everybody else. This would be rough enough if the waves stopped with the medical profession, or the mental health field, or the school district. But when you occasionally throw in fellow church members, friends, acquaintances, and family members (especially family members) the waves become giant tsunami's to try and keep your head above. It seems like we are constantly having to justify a decision as to what we feel might be right for OLA and our little family to the entire world. People asking are you sure about that, have you thought about this, what if this happens. It especially is hard when at times people have said "you shouldn't always live your life on the "what ifs". How contradictory is that. I wish people would make an effort to really learn about FASD and it's resulting disabilities. Then make just two assumptions about us - one, my spouse and I are reasonably intelligent human beings, and - two just maybe we have considered the "what ifs" of the decision. Maybe instead we could use a little support in those decisions and not all the second guessing. So today I am swimming against the rising wave of the tsunami with no feeling of an effective life jacket!!! It's a long way to swim to shore without drowning!!!

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