The Dance!!

Why is it that it is so easy to dance around the issue but not put a name on it. For two years now we have been working with “professionals” to find appropriate help for OLA. They have given him an alphabet soup set of labels. But refuse to give the one label that should most likely be on there – something on the FASD spectrum.  The behavioral specialist even went as far as to say we were “definitely seeing FAE” but when the papers from his office arrived was FAE listed anywhere – NO!  The geneticist told us that if they ruled out everything else they were testing for then it would be FAS. Have we ever seen paper work stating FAS  - even though we received paper work ruling everything else out- NO! They dance and they dance and they dance but refuse to admit to the elephant that is sitting smack dab in the middle of the room. Why is it so hard to call a duck a duck – why do they insist that it is a goose.
This is what I wrote on a list serve group last night. It has been a very long couple of years. It is so frustrating to be playing this game. I just don't understand why those we've seen can not seem to admit to what seems obvious to me. Are they afraid that the label will bite them.   You can't kill a dragon with a mouse trap. It is much easier to tame a dragon when you see it for what it is.
No the label won't change the behaviors and other issues but it would eliminate those things that aren't remotely helpful.  Every time we see a different specialist we start out with such high hopes that maybe we are on the right road. The last two years (and more before we knew what was going on) we have danced this dance time and again. It has been a very long and exhausting road with no real end in sight. Dancing in the waves holds no joy when you feel like you are drowning.