Monday, June 13, 2011

The Report!!

It is interesting to deal in an integral way with the medical field. about two weeks ago we finally received about two thirds of the written report from our clinic visit in May. (We are missing the PT report and the Education specialists report). The diagnosis at this point is SID and ODD with the possibility of FASD. We really didn't get anywhere. They are sending us to see a Geneticist in October. And they have recommend a special behavioral OT class (Occupational Therapy) for the SID/SPD (Sensory Integration Disorder/Dysfunction) and a Special behavioral therapy with a Psychiatrist for the ODD (Oppositional Defiant Disorder). And we should continue to watch for ADHD - which they found that he didn't meet the full criteria for (all though his regular pediatrician had already diagnosed him with in October).
The most interesting thing though is that SID can trigger ODD problems. And ADHD , ODD, and SID are all issue that can be attributed to FASD.  Yet we can not get the Doctors to diagnose him with FASD - even with the confirmed knowledge that his birth mother drank. So off  to a geneticist we go.
My biggest fear is that we will see the Geneticist in October and he/she will not find anything and we will be right back on this wild roller coaster ride we are taking. So crazy and frustrating. We've been told that doctors don't like to diagnose FASD because it is a diagnosis that directly blames another person for the disorder (i.e. the birth mother) - but the only way you can get a disorder on the FASD spectrum is if there is maternal drinking during pregnancy!!! AAAAAAHHHHH!!!! Big time scream in frustration. So the fun continues as well as the insanity!!

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